Neurofibromatosis is a genetic disorder that causes tumors to form on nerve tissue throughout the body. Visit http://mayocl.in/2rc1kVs for more information on neurofibromatosis type 1 and type 2 care or request an appointment.
Neurofibromatosis (NF-1) affects 1 in 2,500 people and often produces cutaneous tumors or tumors affecting the skin. Neurofibromatosis (NF-2) affects 1 in 30,000 people and produces other types of central nervous tumors, most commonly an acoustic neuroma (vestibular schwannoma). While there is currently no cure, there is treatment and advanced care for NF-1 and NF-2 patients.
At Mayo Clinic, multidisciplinary teams of experts work together on complex and rare conditions, including NF1 and NF2. Using the latest in medical innovations and research, these teams include neuro-oncologists, neurosurgeons, plastic surgeons and others.
Dr. Maciej Mrugala, neuro-oncologist; Dr. Radhika Dhamija, neuro-geneticist; Dr. Raman Mahabir, plastic surgeon; and Dr. Alyx Porter, neuro-oncologist; from the Neurofibromatosis Clinic at Mayo Clinic in Arizona provide an overview of NF1 and NF2, treatment options including Proton Beam, and the importance of collaborative care for neurofibromatosis patients.